fundraising 2012

we are trying to raise money for travis to go to a company called brainwave http://www.brainwave.org.uk/fundraising_index.aspx
so far we are trying to sort out
a raffle
a fancy dress walk
a bungee jump
a sky dive .
in april my dad had his back waxed to help raise the money for brainwave , i will update with photos of the day and how much has been raised .

diagnosis day

today we met with the neourologist and now have a full diagnosis travis has ... spastic quadraplegic cerebal palsy .
she explained that traviss head is smaller than it should be at 14 months and that will cause development delays .
 she also said if he cant sit roll or speak by the time he is 2 he wont do it at all .
travis is still not feeding properly so is being booked in for a video fluoscopy as  he is losing weight very fast and as he is not eating enough he will have no energy to do anything .
 im still not happy he is not getting enough physio if he has only got 10 months to try to do things you would expect them to be doing more to help . :((

back to being a tubie

 this is travis chilling having a sleep after his feed in the morning dreading his big day to come.travis has been having a few feeding issues and has been losing weight very quickly so the drs has advised to put his ng tube back in to get him back to his ideal weight and give him a bit more energy so hopefully everything will go according to the plan and it will only be temporary.

 all dressed and ready to go to the hospital to have his ng tube put back in.

 travis at 14 months after having his tube put back in .

travis the next day getting used to having his tube in .

ellerslie centre

this is ellerslie where i take travis to see his pediatrician and all his therapists.

 this is the magic light room that travis plays in when he goes to see his play therapist weekly he loves playing and singing with karen.

                                                      travis loves the light curtain.

travis is in his giraffe corner seat here.

therapists that work with travis here are ...
karen - play therapist
louise - physio
megan - speech therapy
lesley - occupational therapist
dr thiyagesh - pediatrician
sharman - main person there she deals with any problem or question i have .

travis loves spending time here in the waiting room watching all the other children and listening to the playing .
he says hello to all the staff when they walk past .

january 2012 mummys story

well today travis has got another chest infection not good he has been awake all night having muscle spasms.
so this morning he is very grumpy and tired and constantly coughing.
we went to the dr yesterday an he said if it hasnt gone by tomorrow we have to go back .

medications 05/01/12

these are my medications i am on now and what they are for ...

epilim - to help stop my seizures
vigabatrin - to help stop my seizures- now stopped and still seizure free 7/11/12
omeprazole - to help my reflux now stopped after fundoplication
valium(diazepam) - to help my night time muscle spasms
baclofen - to help loosen my muscles and help stop my spasms
infatrini - is my milk that i have to eat now changed
nutilis - is the powder that helps thick my medications that make me choke- now stopped
nutrini multi fibre low energy milk
broflex - to help lower high muscle tone

my life

hi my name is travis blake walter goddard born 14/11/2010 at 9.35 am weighing 6lb 11oz .
this is my story from my birth to now.
i was born after a very strange birth at huddersfield birthing centre with the cord wrapped around my neck and my arm i wasnt breathing for around 20 minutes until a doctor came to help me as they dont have doctors at that hospital.
his name was dr thiyagesh he came and put a ventilator in my mouth to help me breath.
at 10.35 he took me to meet my mummy and daddy for the first time . i didnt know as i was very poorly.
the dr came with me in an ambulance and took me to another hospital in halifax 30 minutes away .
i had to leave my mummy and daddy at huddersfield.
when my mummy and daddy met me for the first time properly i had a breathing machine called a ventilator to help me breath , i was also on a machine to look at my brain.
the bed im laid on is called a cooling bed which the doctors say is going to help me.
i have got lots of machines around me and i have wires all over my body to help me get better .
well that was my first few hours of life the rest is to follow with pictures . xxxx

my pics

this is the first picture of me that the nurses gave my mummy and daddy

this is me on my second day.
today i had what the doctors called a seizure my heart stopped so the doctor had to give me cpr to make my heart work again.all my family came to see me for the first time as the doctors said that the cpr might not work next time if it happened again. the nurses gave me some medicine into one of the wires i had to help me and i was given another medicine called morphine.i also had a scan on my head that came back ok .
16/11/10 today i was very poorly, my left lung collapsed due to a blockage and i had another 2 seizures which were not as bad as the first.i am very bloated because im not using my nappies as i cant just yet so the drs have put a wire in to help me.my mummy and daddy cant touch me incase it makes me have another seizure .
17/11/10 today i had another 2 minor seizures , also this cold bed i am on has started to warm me up a little bit. im not moving much today but the doctors say its because of the medicine i am having .
18/11/10. today my right lung got fluid on it but the dr says with some physio it should be ok like the last time.i am getting rid of a bit of my wee so my bloating is going down a bit .and i can open my eyes a bit now.my mummy and daddy were allowed to touch me for the first time my mummy held my hand and gave me a wash and my daddy changed my nappy.

19/11/10. today i wanted to take the tube out of my mouth so i did but drs had to put it back in as i still had fluid on my lung and wasnt strong enough to do all my breaths myself. the drs got my ecg scan results back and said there was an abnormality there that she expected because of the medicines i am on. i canalso move a bit more so i took my tube out that was helping me wee and the drs said it was ok so they didnt put it back in .the nurses changed my bed today i was put in a plastic box that the nurses said was called an incubator. i then had my first drink of milk in my tube thats in my nose . it was my mummys milk that she had been saving for me.
20/11/10. today the drs took my ventilator out as they said i could breath on my own now . i also had my 1st poo today which to nurses were pleased about .

25/11/10. i pulled my feeding tube out as i didnt want it in anymore so my mummy gave me a bottle . i didnt like it as i couldnt swallow it properly so the nurses put my feeding tube back in .

27/11/10 . this is me and my big brother darien this is the first time he was allowed to hold me.my mummy and daddy held me today aswell as both my grandmas christine and margaret and my grandad dan .the hospital told my mummy and daddy they had to go home today because they needed their room for a very poorly babies mummy and daddy and as i was getting better they didnt need to live here with me .
30/11/10 . today i was moved into another room that didnt have a roof on it it just had a warm mattress in it.my mummy and daddy came to see me all day every day to feed me and clean me .
05/12/10. i keep shaking today but the nurses said its just because i have had lots of meddicines that im not on anymore.
07/12/10. my mummy and daddy took me home for the first time today after being in hospital for 23 days.

this is me when i am 3 months old with me feeding tube in i am getting very big and bloated because the dr has given me some new medicine called steroids because i keep having seizures at home.a new dr i saw in one of my hospital appointments told my mummy and daddy that i was born with hie (hypixic iscemic encalopathy) and could develop cerebal palsy .

this is me at 4 months with my daddy i am having my feeding tube changed so that is why i havent got it in . a nurse called catherine comes to see me to change it as my mummy and daddy dont want to change it.

this is me at 4 months my mummy is trying to teach me to suck from a bottle and she uses a dummy aswell so one day i wont have to get my food in my tube.

this is me at 4 months my daddy is trying me with my first yoghurt it was very nice.the doctors have given me some other new medicines as i still keep having seizures at home and going to sleep at the hospital for a few nights every time . the medicines are called epilim and vigabatrin . they have now said i have something called reflux which makes my tummy hurt and makes me sick so they have given me a medicine for that aswell called omeprazole.

this is me at 5 months i can now eat properly with my mummy teaching me how so i took my tube out and the dr said it was ok to leave it out .

me at 5 months the medicine called steroids is making me bigger again but i can now wear my tigger pjs that i like to look at .

this is me at 5 and a half months i keep trying to sit up by myself but i can only do it for a little bit then i fall over .

this is me at 8 months . i dont need to take the steroids anymore so im getting a bit smaller and i like to smile a little bit.

this is me at 10 months i like to sit in my car walker but i cant play or do anything as it hurts my arms and legs .

this is me at 10 months . this is the first time i have tried to crawl it took my a while but i moved a little bit.i wanted to get closer to the mirror my mummy had put in front of me.

this is me on my first birth day in my corner seat. i couldnt open my presents myself so my mummy had to help me. i keep doing some stretches that the dr has called muscle spasms they hurt and make me scream, so the dr has given me another new medicine called baclofen to help relax my muscles as they have said that i have high muscle tone aswell, but it makes me not be able to move. i cant move my arms or legs or hold my head up.

this is me at 12 months i am having my first chip with coleslaw on my mummy is holding my hand up for me so i can suck on the chip as i still dont know how to chew yet .

this is me at 13 months . this is my new chair called a tritan zero which helps me sit up right so i can try to play with my toys . this toy is my christmas present for the staff at the sensory team at castle hill school where i go on a friday to swim in the hydro pool and play and sing songs.

this is me 21/12/11 at my christmas party at a place called ellerslie where i go to see all my therapists.
i see karen for my play therapy every week.
i see louise for my physio every fortnight.
i see meghan and julie for my speech.
i see lesley who is my ot for all my seating .
and i see dr thiyagesh my doctor there and also the main person there called sharman.

this i me at 13 months with my mummy i am wearing my other new suit as im going to another christmas party.

this is me at 13 months at ellerslie playing with my mummy and karen i am playing with paints to make a snowflake to go on the wall.

this is me at 13 months on christmas day with all my presents from my mummy , my brother , my grandma christine, my auntie jenna and my cousins alissia and tyler. everyone had to help me open them all as i get very tired when my mummy makes me work hard with my arms and legs .