doing well

travis is putting weight on now with having his ng tube . its giving him a lot more energy to try doing more things . he loves this inflatable roll his grandma bought him for christmas , he leans on it an pushes with his feet so he moves . this morning we have the physio coming out to fit him for his squiggles standing frame , i have been told great things about them so im hoping it will help him with his leg strength so he doesnt just stand with high tone .

this is travis in his standing frame watching baby einstein on the laptop :)
not sure he likes it yet but he need to be in it for at least an hour a day so no choice .

hospital visit again 08/02/2012

travis had to go back to the hospital again last night as his cough is getting worse again . we spent the night there and they sent us home with an inhaler . i hope it helps a  bit cos all this coughing is making him get a sore throat and making him sick .
we have an appointment in the morning with dr thiyagesh to see what he thinks and i want to disscuss with him about maybe having the ng tube removed and maybe having an operation to have a g tube put in . i  dont like the idea of having an operation done but i have been told by various other parents that it has helped their kids in loads of ways .
for the last few months i have joined a few groups on facebook and met many wonderful people who understand what we are going through as they also have children with special needs , many of them have the same as travis or similar . its great to speak to people that really understand tha pain of what is happening and going to happen . all the parents are from all over the world so they are there for you 24 hrs a day for support or just to answer any questions you may have or even just to moan and rant .
AT THIS MOMENT IN TIME I HATE HIE AND WHAT IT IS DOING TO TRAVIS . :(

travis s weekly routine appointments

monday
carer sharon comes from 9-11am
we save mondays for any appointments not arranged .
normally his ot , dieticain , food speech , and assessments.

tuesday
sue / sarah come for sensory session at hime 9.15-11.15
carer sharon comes 3-5pm

wednesday
travis goes to see his daddy overnight

thursday
i pick travis up from his daddys and go straight to his play sessions.
every fortnight he also has physio.
every 3 weeks he also has verbal speech therapy.
every 6 weeks he has his appointment with dr thiyagesh

fridays
afternoon he goes to the hydropool and creche session

saturday
travis goes to sleep at his daddys from 12

sunday
travis comes home from his daddys at tea time

hospital visit 29/02/2012 - 03/02/2012 barnsley hospital

well travis ended up in hospital again on sunday night he has had trouble breathing due to having bronchilitus

and it got worse . he stopped breathing and had 2 seizures so i ended up phoning an ambulance.

in this photo travis was on oxygen and an iv drip which he was on for 4 days.

 day 4 travis had his oxygen removed and ng tube put back in .
we spoke to a speech therapist in barnsley hospital where he was and she advised not to oral feed as is was dangerous so now travis is now fully ng fed again .

travis on friday while we were waiting for his delivery of hi equipment for his feeding pump before we could come home .

fridays sessions

this is what travis does every friday ..

 this is travis having his sensory session at home with sarah
he has a session every friday morning from 9.15 to 10.15 .
he loves to look at the lights and sing along .

this is travis swimming in the hydropool at castle hill school.
he goes there every friday from 1pm to 1.30 pm then we go into another room till 2.30 for the creche
where they play games and sing songs.
travis has loads of friends there :)